Lumps & Bumps: Fibromyalgia & Lipomas
Do you have lumps and bumps under your skin? A lot of us with fibromyalgia do. They're called lipomas, and they're non-cancerous tumors - basically, lumps of fatty tissue just below the skin.
In most people, lipomas are painless, but we're not most people, are we? We're more likely than others to have painful lipomas, possibly because the lumps can hit nerves, and our nerves are hypersensitive.
Lipomas that don't cause pain aren't a problem and don't need to be treated. You can treat painful lipomas with standard pain medications, but if they're still causing a lot of pain, you may want to talk to your doctor about treatment options. The main ones are hydrocortisone shots or surgery, and both can cause problems for us - some experts say hydrocortisone makes fibromyalgia symptoms worse, and recovering from surgery is a long, extremely painful ordeal for most of us. Also, surgery isn't guaranteed to eliminate the pain.
I have a ton of these things. I used to think they were inflammed and knotted muscles, but my massage therapist tells me otherwise. I have a hard time telling which lumps are lipomas and which ones are myofascial trigger points, especially since most of them are in my back, so I'm not sure if any of mine are painful.
While lipomas are common in us, don't assume that unexplained bumps are just lipomas. Have your doctor check them out, just to be sure. (The same goes for lumpy, fibrocyctic breasts - just because we're prone to harmless lumps doesn't mean we can't get cancer.)
Do you have lipomas, painful or otherwise? What helps with the pain? Have you had treatments for them? Share your experience by leaving a comment below!
Suggested Reading:
- The Monster List of Fibromyalgia Symptoms
- Odd Nerve Sensations in Fibromyalgia & Chronic Fatigue Syndrome
- Impaired Language in Fibromyalgia & Chronic Fatigue Syndrome
Photo © Dylan Ellis/Getty Images



Dear Adrienne,
I was very interested in todays blog, re lipomas and FM. My primary care doctor seemed to think that I was making a huge fuss last year, when I insisted on a hospital scan of a painful lump in my L bicep, of some 3-4″ in size. The feeling was that I should simply take the doctors word for it that it was a lipoma – but of course I worried about the real (if small) possibility that it could be a sarcoma. I’m relieved that a scan has not indicated that – of course. But it is still causing me considerable pain, and I ve been made to feel that I’m a whining hypochondriac. (…”lipomas are painless”, they said….)…It was another episode that underlined the fact that medics understand FM very poorly: I have highly toned upper body musculature because of pain referred from my neck and back, and so my bicep is being aggravated by this lipoma with every minor movement. But what do I know? I’m just the patient….
Kind regards,
jacqui
Dear Adrienne,
I am writing, because I first was told, that I had erythema nodosum. This was back in 2002. I had what turned out to be a lipoma on my right calf muscle; and it was very painful. When I went to the doctor for the first time for this lump, they first checked to see if it was a blood clot. Then they came up with the erythema.
Now, in February of this year, I had the lipoma removed. The doctor said it came out in two pieces. My arthritis doctor was so kind to me. He was the one that finally referred me to a surgeon to see what was going on.
I do hav c,f,s and hurt quite a bit. I am scared because the surgeon’s nurse told me that lipomas generally do not cause pain.
I am glad to have found this, and to know that there are others out here that makes it a little more bearable.
Patti
Dear Adrienne,
I am writing, because I first was told, that I had erythema nodosum. This was back in 2002. I had what turned out to be a lipoma on my right calf muscle; and it was very painful. When I went to the doctor for the first time for this lump, they first checked to see if it was a blood clot. Then they came up with the erythema.
Now, in February of this year, I had the lipoma removed. The doctor said it came out in two pieces. My arthritis doctor was so kind to me. He was the one that finally referred me to a surgeon to see what was going on.
I do hav c,f,s and hurt quite a bit. I am scared because the surgeon’s nurse told me that lipomas generally do not cause pain.
I am glad to have found this, and to know that there are others out here that makes it a little more bearable.
Patti
I had never heard of lipomas but I wonder now if this is what I have on my upper back, shoulders and in my breasts. I see a massage therapist monthly and she is always trying to massage out these really painful knots and lumps I have but usually they don’t disappear. I will be seeing my doctor about this for sure. Thanks for the info!
Thank you for this very informative post. I have multiple nodules all over my body. Some hurt and some do not. I have not found anything to help with the pain. Have you?
I faithfully read all the newsletters as soon as I receive them. Right now I wish I had seen this one about a year ago. I had a lipoma located in my lower back that was causing a lot of pain. I tried pain pills, muscle relaxers, physical therapy and finally decided to have it removed. I have to say that was the easiest surgery I have ever had. I only took 2 days off work and was pretty much back to my “normal” self within a week or so. Time will tell if I’ll get more but for now…so far so good.
Hi,
I have/had what may have been lipomas. I must ask my doctor what they were/are. I had to have 2 removed from my fingers as they were so large they were always scraped and bruised from being hit as I would do normal chores.
Anothr one would have caused serious nerve damage had I not had it cut out when I did.
The good new is, since some of these are so very easy to remove, you can do it with a local. I had the last one done fully awake with a nerve block. It was really cool to be awake listening to what was going on.
I have had so many surgeries I didn’t need to have anesthesia pumped into me one more time. I have two more – one on my arm and another on my thigh. I suspect they are the same kind of thing. My PCP is aware of the one on my leg. Forgot to mention the one on my arm. There are just too many things to talk about at an apt.
Great article Adrienne.
I have tons of these lumps. One was extremely painful all the time, and my doctor thought I was wrong. It even hurt when I breathed in. Finally I went to a dermatologist and had it removed. She said the pain was from it pressing on a nerve. I am much more comfortable. The others are mostly painless, unless I am having a bad day- then they are achy to the touch.
I think this is what I have on my knuckles and palms of both hands. They are so very painful that I can’t even hold a fork or pencil. I have been sent to hand specialists, and now going to be seeing a doctor in the pain clinic. If they don’t figure something out soon I may try the Mayo Clinic in Minnesota. I know they can do some amazing things there.
Dear Adrienne,
I had limpoma on my left shoulder the size of a grapefruit. It had to be surgically removed. In fact, the surgeon told me the moment she made the cut it popped out on the floor (smile). This was over ten years ago. I have not had another that size since but have had problems with many cysts, including fibrocystic breasts.
I have lumps on top of both wrists. The left one is larger than the right. Whenever I’m in a flareup they enlarge,get hard and ache. Otherwise they’re soft or fatty as describe. By the way, when in a flare I can tell by these things getting hard and painful. That’s the first sign that I’m getting sicker. None of docs seem to think it a big deal. Thought it was unique to me.
Oh my! I have a very big lipoma directly underneath my breastbone. Makes it painful to slepp when I lie on my left side. Initially the MDs thought this was just complex scarring from very intense endometriosis (3 surgeries). But now – thanks to all of you – I might have a different understanding of it!
I have what I assume to be Lipomas just about everywhere in my body. Too numerous to count and have had them since I was a child. They are very, very painful to the touch. I have recently gotten some in the bottom of my left foot and it is often hard to walk on it. This is just one more of the many things people with autoimmune diseases have to endure…
glad to hear others have the same weird thing I have, never wanted to ask a doc, thought they would think I was nuts
Wow, thanks to all of your comments I am not as scared as I was two days ago about my sister. She had a mature lipoma surgically removed in Germany last year, but it just showed up again 2cm over her first one. Has anyone else that had them removed with surgery, get repeated ones? I will try to get her to come here and do the surgery for the second one. It’s right underneath one of her breasts, so I think it’s important to take care of it. Any good doctors you recommend in New England?
I have multiple lipomas all over but mainly in my neck. They hurt a great deal and cause my neck to be stiff. I also have grainy muscles. When I run my finger down my leg, it feels like I have hundreds of pebbles on my muscle. Does any one else have this?
Lee Ann
I have a non-painful lump under my left lower arm area. It doesn’t hurt unless I try to move it around, which it doesn’t move. So I just live with it.
Didn’t realize this is so common,but nice to know I’m not alone. Mine first started in November of last year and now it seems I have a new one everyday. Unfortunately mine hurt, they are in my arms, my neck, my scalp even on my forehead, some are getting close to the size of golf balls. They say you can have them removed by liposuction..wonder if my insurance would pay for that. I’ve had some luck using Lyrica for the pain, as some of it is more neuropathic in nature, ie burning stinging pinching, stabbing. When I’m sick they hurt worse..don’t know why just putting their two cents in too I guess. And I use to hate having freckles..wish I could swap now.
Thank for this info. I have been a surgical nurse for 35 years and have removed many lipoma’s from pts. never thinking those terrible knots in my shoulder and neck could be anything else. I have lipoma’s every where and my doctor keeps a close eye on them. I have been going through a lot of swell in my left leg and just had another CT done. If I would have known more about FM, but I could not believe I could have this due to the fact there are no true tests out there to determine FM. Well I am here to tell you it is very real and these lumps are nothing to truly worry about. Have a blessed week end and week. Carolyn
i would like to say thank you all
thank god for your infro..i have been dealing with this now for two years trying to find out why i have all these different lumps.
i can’t even tell you all the differnt doctor
and test i have had.
the first one showed up in my left arm and caused such pain the lump is the size of a golf ball. this year i found more on my left side again by my ribs and in my left leg. the lump in my leg has cause me great pain and trouble walking…i have had acupiture and it helps.
i do find that warm to hot shower help a little and a heating pad at night will relax me.
from reading eveyone comment’s i notice that everyone has lumps on the left side of there bodies does this mean anything.
also i would like to know if anyone has trouble with having a fatty liver.could it also be part of FM.
if so please comment.
thank you all for making me know am not crazy and not alone…everyone stay well and happy.
marg.
if so please send a comment.
My friend and co-worker just pulled this for me. On Wednesday, My doctor told me these lipomas don’t hurt and that I was making them hurt by rubbing them. It was no use explaining. I had all ready heard they were a symptom of fibromyalgia from a massage therapist who had spoken to a specialist. My doctor said, “There are no lipomas with fibromyalgia.” I was so confused. I was soo angry. I’m sitting here at work crying due to the pain and my leg has swollen up. My husband and kids had noticed my leg yesterday which has been in great pain for 3 weeks now shooting up towards my hip. I cannot sleep, sit still and it hurts to walk. People think I’m crazy. I can’t bear to have people touch me or lay my arm on my desk. It just hurts and burns. I think it’s terribly sad to see all of these comments- a replica of my own- stating that we are scared because our doctors say “Lipomas don’t hurt” so we think it’s cancer or something else. My arms don’t feel like my arms anymore. I have been so depressed because people don’t understand how badly it hurts. I have meds for the first time this Thursday. We’ll see. She said I had an extreme vitamin d deficiency as well. She didn’t even look at my leg. I was getting ready to write a will because I was sure I was dying of some kind of cancer. They did an MRI of my neck and it was a lipoma, not my lymph nodes thank god. I have thickness on my arms and legs over my bones. Feels soft. I am hypersensitive to sounds, always have been. Is anyone else? alarms, humming and buzzing noises….
Andi,
Yes, the sensitivity to noise is very common in us. When I used to drop my kids off at daycare, some days the noise would hit me like a truck and stir up all my symptoms. I really can’t handle repetitive noises, especially when they’re high pitched.
I have lipomas over my sacrum in my low back and in my hips – many of them. I have had one removed from my abdomen by my surgeon.
I now know from becoming certified in First Line Therapy (to help people regain their health and make significant therapeutic lifestyle changes) that many of us with FM don’t have enough Lipase to break down our fats so we store fat in lipomas throughout the body.
I have just started taking a full spectrum enzyme product because I don’t digest anything all that well but you can get Lipase separately to take with meals.
I don’t know if the ones I have will go away but they say if you take enzymes between meals they gobble up scar tissue, fats, etc. in the body. Worth a try anyway.
BetsyT
Hi! I’m new here (43 yrs old)and not yet diagnosed with fibro, but have alot of the symptoms and MULTIPLE lipomas (arms, thighs, back, abdomen)and continue to keep getting more! Most of them hurt. My mom is 66 and has been diagnosed with FMS and has lipomas. She truly believes I have FMS too, so I am going to checked. Until I read this, I never heard of a connection between the lumps and FMS! Mom sees a rheumatologist, which she is not happy with and so we are looking for another doc. Does it have to be a rheumatologist or can another specialist help? Thanks for all the good info!
Celeste,
You don’t have to see a rheumatologist – any doctor who’s knowledgable about FMS can diagnose and treat it – but it can be hard to find knowledgable doctors. With all of the neurological discoveries in recent years, many neurlogists now treat us, and in my opinion, are generally better qualified to do so. A lot of rheumatologists still want to treat us like we have arthritis, when we actually have a disordered central nervous system.
I have to say, though, that the speciality is rarely a predictor of how well the doctor can treat FMS – it really is dependent on the quality of the doctor and how much time they’ve put into learning about this condition.
If you’re concerned about any kind of legal issue or disability claim, however, a rheumatologist’s diagnosis is generally better regarded than a diagnosis from another doctor.
Best of luck to you, and I hope you can find some effective ways to treat/manage your symptoms before they get too severe. Early treatment is key!
Hello…glad I found this website!! I just had an MRI anddetermined that the 4cm lump in my left bicep and inner left elbow are lipomas. I too worried about liposarcomas…the pain some days is unbearable…now have a lump on my left inner wrist..it too is painful,…I will see what happens in the next few months anddecide waht to do. I’m not convinced that surgury is an option.Has anyone tried any holistis treatment? Fran
I have one on the outside part of my lower legs from since the age of 8. Its been a living hell when I walk. I have been to several doctors. They don’t seems to understand the amount of pain this gives. I have one each on my upper arms but these are not painful. The last doctor I visited told me they are fat lumps and can be removed. I am worried that I may not be able to walk after. I am glad I read you guys stories I will now go and have them removed. Thanks guys.
Hi i am 27 and have fibromyalgia . I have been been worried about spots i have been feeling in my neck and under arms and i even have really sor Breat. and i ran accross this web site. i have been so scared to even ask the doc what this could be , and it all makes since.. My skin hurt to the touch expecially in my torso area. The lumps range form pea size to maybe a marble and hurt soo bad to the touch .. I love this web site and it helpe me to understand a little more about haveing fibromyalgia.. Now i am not so scared to talk to my doc!!
Hi,
I am awaiting lab results from my lipoma remvoval. It was on my left shoulder about the size of a baseball. The odd thing, I started working out with weights and this large lump appeared out of the blue. My husband came home one evening and went to hug me and said what is that huge knot on your shoulder. Well, that was 3 weeks ago. As I stated, I had the lump removed in my derm’s office with local anthes. and let me tell you it was awful! And painful. Mine did not just pop out. He dug around for about 45 minutes to ensure he got all of the growth because it was entangled in my nerves and muscle. I am still in pain and am very sore. I hope it is a lipoma and nothing else.
I can’t believe what I’m reading here,I am NOT imaging the pain from the lipoma on my right upper arm!!!When I went back to my surgeon about the pain,before I could speak he said you are not having pain and refused to speak about it.Some times you do qeustion yourself when so many doctors refuse to believe not only that you have FM but you can be in constant pain.I have had it for 25 yrs as well as blood clots and stasis ulcers.not a good life but glad I found others like myself..thank you
I’m glad I found all your comments here. I’ve been dealing with literally thousands of lipomas, but they are typically only painful upon pressure. I also have occasional skin pain. One doctor told me I have fibro, another says no, the pain is from my spinal stenosis, and on and on. The dermatologist tells me it might be Dercum’s Disease. Is anyone familiar with whether the lumps associated with fibro are necessarily also Dercum’s Disease, or are they two separate conditions?
Thank you all. I wish you many more good days than bad!
Michelle,
Dercum’s and fibromyalgia are two separate conditions, but it can be extremely hard to tell them apart. People with fibromyalgia are prone to lipomas, and people with Dercum’s can have fibro-like pain.
You mentioned skin pain, and that’s a common fibromyalgia symptom that’s only found in a few conditions. It’s called tactile allodynia, and you can learn more about it in this article: 7 Types of Fibromyalgia Pain
Hi Adrienne, As a follow-up to my last question regarding Dercum’s, do you know how to tell the difference between the lumps of that disease and FM? My doctors seem clueless, although I was diagnosed with FM earlier. My zillions of lumps are tiny – BB to pea-sized, often come on very fast (overnight practically), but they don’t seem to have grown past that size in the past year. I generally don’t have pain from the lumps except very occasionally, and even then I can’t tell if it’s coming from the lump. Some are tender if I press on them depending on the day. As you mentioned, the conditions overlap, but strangely both list fatigue, muscle weakness, and problems sleeping as symptoms, and these I don’t have. Do you have an opinion? I’m sorry to bug you again…I’m hoping maybe this will help someone else out there too!
Michelle,
Sorry, I don’t think there’s a difference in the lipomas associated with each condition. Your best bet is probably to look around for a doctor who knows about Dercum’s, since most don’t.
Don’t worry about what symptoms you don’t have — we all have our own set of symptoms and nobody has them all, fortunately (since there are more than 60.)
I was relieved to read these posts stating that other people have painful lipomas. I had one removed from the back of the base of my neck jsut over 2 years ago. It was painful but my doctor said that wasn’t causing the pain. (It was biopsied and dianosed as lipoma.) Funny thing is my pain reduced after removal. 3 months later it grew back bigger. I had removed again about 8 months after the first was removed. It was removed by a surgeon who said it was deeper then they thought. The surgeon said no need to biopsy again. It has been over one year after the removal of the second one and ir is growing back a third time. I am not sure what to do about it. My pain increased again about 2 months after removal of the second but I couldn’t feel the lump until a few weeks ago. Now I know why the pain was there. At this point I don’t know what to do. Have it removed AGAIN or just leave it. These really suck. My new doctor says the lipoma that grew back a third time is normal and is not causing the pain. Urgh.
Bridgett, the lipoma grew back most likeliy because the surgeon didnt excise the whole lipoma, it even a small piece is left behind it will grow back. I dont have fm but I have multiple lipomas. None of them are ever tender. The only time they are uncomfortable I think is when they first start to grow and are establishing a position in the fascia or subcutaneous tissue. I think they are painful to people with fm because they are somehow irritating the surrounding tissue, everything I have read about them has never suggested they are painful or tender. I think a lot of the people are mistaking them for tender points of trigger points. I have treated the lipomas surgically and recently with lippodisolve which worked almost completely eliminated a bunch of them and reduced the size of nearly all of them but it took about 12 visits. I plan on taking the summer off and continuing in the fall. I just started taking Biosuperfood which makes some aggresive claims about getting rid of Lipomas so I bought 3 months worth. I will also try to change my diet a bit as well. So Bridgett what I would do is find a better surgeon.
Yes, Dave you are right–if the surgeon leaves a tiny piece behind it will grow again.
I had 2 removed from my inner right arm and one has started to grow back the other has gone.
My doctor described them as small pieces of broccoli and that they would pop out of a small incision when removed but all had to be removed.
The pain part is that veins and nerves start to grow through the fatty lumps and this is what makes them painful. You may find that they look slightly blue more especially under some lights–this is the blood in the veins–I first noticed the blue bit when I was trying on clothes in a shop!!
I have some tender and some not but they are spreading.
I was told mine were probably an inherited form–and no more has been done
At 56 I feel I have a terrible memory and brainfog but that could be just ‘an age’ thing!
I have started taking enzymes–I just ‘feel’ that is what I need and a multi-vit but apart from that I will wait and see what happens
Good luck to everyone with the lumps & bumps!
Lipomas that press on nerves is not consider fibromyalgia but Dercum’s Disease ther are the type that occurs in obese patients and ones that occur in non obese patients. after half my life trying to figure out what was causing my inner thigh, thigh pain, and pain around the knees, I discovered on my own Dercum’s Disease. How I discovered it was that I listed the symptoms that I had, and I realized I couldn’t describe the one in my inner thigh. It was not the muscle exactly and it wasn’t bone but it was in the fat. I googgled that I had lump in my fat that hurt and what came up was Dercum’s Disease. Upon reading about it I was shocked after all these years that I was reading about symptoms that describe me to a T. I went and faxed it to my doctors, told him it was inportant that he read it. I got referral for dermatologist and had biopsy that confirmed it was lipoma once the biopsied was remove I had pain relief for first time , Dermatologist said it was on a nerve which is what Dercum’s is all about: painful lipomas or lipomatosis attached or compressing a nerve, ther is no cure or treatment and can cause you tobecome disabled and it is a slowly progressive disease. I have fibromyalgia secondary to Dercum’s. any one who has lumps that are movable, rubbery or dough below the skin in the thighs,knees, arms, elbows anywhere there is fat except face and hands and swellin of below the knees to ankle lipedma has Dercum’s. The done side is not many doctors are familiar so you have to educate the learn all you can about the disease. I pulled up a brochure of microsoft office and put in the information, where to find it, treatments and sources. when I got to the doctors I give them the brochure or fax info first. don’t consider it fibromyalgia before looking into this disease. Jhewels
Hi Everyone, I have just found this site and am very interested in all your comments on Lipomas. I was wondering if anybody had advise on after surgery pain. I had a lipoma removed 6 days ago from my left shoulder blade and to be honest the pain is getting worse by the day. It’s like somebody is putting a knife in my back everytime I move my arm. The scar looks perfect, there doesn not appear to by any infection but no matter what painkillers I take they seem to do nothing. Any help/advice would be very welcome. Thanks, Michele
I have hundreds of these things, some large, as large as a marble and about that hard, some are loose and cover a larger area. Some are small and very hard nodules. These are in my legs, my thighs, behind my knees, but they are so painful I cannot stand it. There is nothing that can be done about it according to my doctor, but then my doctor cannot seem to do anything about any of the problems I have, and I now walk with two forearm crutches, which I did not need a year ago. Unfortunately, my insurance, medicaid or some form of it, doesn’t cover anything much except morphine and tests that reveal that I do have degenerative disc disease and arthritis, but I am not getting the help I need and do not expect that I will. If I thought I could remove these myself I would, yes that sounds crazy and no I won’t do it but it does make a person feel desperate when no one will listen and no one will help. The pain is unbearable. I will have to be crushed in a machine before I will get the help I need, that is what I feel it has come down to, as I have tried everything the way one is supposed to, been patient and methodical, done everything the “right” way, but nobody cares. It is just hardened fat that is putting pressure on my already over-sensitive nerves and that is just not enough. Facet joint injections left me with more pain than I had before having them, I am now almost bed-ridden and am waiting for my SSD hearing, another 9 months or so. Lumps of fat that get hard, there is a name for them other than lipomas but I can’t remember the name. No one really cares about e anyway.
Hi. My lipoma was on the kidney; it’s been removed but for those with lipomas all over be aware this is a lipoma too ; causes NO pain and was only found because of a job injury that resulted in a CT of the abdomen. They can lead to dangerous hemorrage and although rare dr’s skip biopsy for NSS to rule out malignancy. I get a 6 month CT soon and fortunately there’s only a 5% chance of regrowth. Because of mine’s placement they left positive margin. It’s called renal angiomyolipoma.
Hi all, I found my first two lipomas on my left fore arm about 25 years ago. Then I gradually developed so many of them in my both upper arms, torso then down to my both legs. Back in 2002 I had removed 22 of them from my body(70% of total) but the number increased rapidly in my entire body after the surgery. I have stopped counting them, I might have more than 300 in my body now. Luckly non of them are painful. I am thinking about removing about 8 of them again as they are large and not looking very good.
I am very interested in limpomas. I had gastric bypass and with the weight loss I am seeing and feeling lumps all over my body. What I would like to know is, what happens if anything when you physically pinch them until they break up? I have searched the web and could not find anything. THanks, Linda
Well,I finally had my lipoma removed on Aug.14th from my right upper arm.Surgery went well but unfortunatley,the ‘dissovable stitches’ became infected and an abcess developed so took a little longer to heal.Thankfully I finally had enough of my Dr.s rudeness and have found a wonderful new one.He insisted on all new bloodwork and found I have a very low calcium/potassium levels which he says can contribute to muscle pain.Now taking a supplement as well as Robaxacet and will be evaluated next month…here’s hoping
Excellent information is very useful
Hi Everyone!
I have had fibro for years but in the last two years I started having more interesting symptoms. The lumps started increasing in number all over my body. My thighs swelled up and when they went back down I had folds like elephant legs. I gained weight for no reason. I was more fatigued and in a new way. All of that was making me start to ask questions but I kept getting the ‘It’s your fibro, just lose weight and exercise.” When I started bruising all over I knew something else was going on. I, too, looked up “fibromyalgia lumps under the skin”. The first article I found says that lumps are common in fibro but that it is possible it is Dercum’s Disease. The article goes on to talk about the symptoms of Dercum’s. Well, that was me! I then started asking doctors about it. Got the same “I don’t know, lose weight” response. FINALLY I talked to my fibro doctor. He googled it and within a minute agreed with the dignosis. (It’s also called Adiposis Dolorosa which he had heard about.)
I belong to a support group at http://www.mdjunction.com/forums/dercums-disease-discussions
If you read through our messages you will hear the pain of each of us going through trying to get someone to tell us we really DO have something else wrong with us and trying to get a diagnosis. Many of us are convinced that many people with fibro have it but their doctors are telling them that lipomas don’t hurt, lose weight, they’re imagining it and worse. Sound familiar? Dercum’s is classified as a rare disease. We think it would be more well known and researched if all the people with doctors who never heard about it got documentation and insisted that they pay attention.
It’s a tough road! But if you think you have something more than fibro, please please go check out some of the Dercum’s sites.
The article I mentioned is at http://www.arthritis-treatment-and-relief.com/lumps-under-the-skin-fibromyalgia.html
The ONE doctor who researches it has a great site with much information. It is http://www.lipomadoc.org. Look under Adiposis Dolorosa. The article she mentions in her footnotes is especially helpful as it talks about the common symptoms Dercum’s people have.
Please feel free to sign into our support group and ask questions. If you’ve got it, you’re not alone – or nuts.
I have fibromyalgia and a painful lipoma on my lower back and also a large one on my stomach that was caused I think by a tummy tuck 10 years ago. I didn’t know about the connection with fibromyalgia. I am going to tell my plastic surgeon about this and see if my ins will pay to have this removed. It is so big it makes my upper stomach look bigger than it did before my tummy tuck.
Judy Bogard
Wow-there’s a name for these things. Mine are mostly in my back but while getting a freebe massage in a store recently, the lady said they’re also in my arms. The ones in my back are very painful when pressed on. At least now, I know what the knots are called.
philly, look into “Ganglion Cyst”
They’re harmless but can be painful. I have one on my wrist, on the top.
Adrienne,
I just stumbled on this site by accident and how enlightening. I have had a very tender area like 2 peas in my left upper thigh for years. The pain seems to extend about 6 inches downward from the lumps as well. Doc says lipoma. MRI showed nothing. I am so glad to hear of the connection with FM. It may explain why it is so tender. I will also look up Dercum’s Disease…
Mary